Information for families and carers
The National Disability Insurance Agency (NDIA) knows that families and carers, are partners in the support of people with disability. You provide help and support that cannot be provided by formal services or paid support workers. One of the core aims of the NDIS is to better support you in your caring role.
Your views and experiences will be important in the planning process for the NDIS because you have a unique understanding of the person you care for.
If the person you care for requests it, you will play a vital role when the person you care for enters the scheme, helping with decision making about ongoing support needs, goal setting, assessment and the planning process.
Each participant will have an individualised plan that is tailored to their goals, personal circumstances and disability support needs. The types of supports that the NDIS may fund that may have direct or indirect benefits for you as a carer include:
- Personal care to support an individual in their home or the community
- Supports to assist people with disability to enjoy social and community interaction without relying solely on you
- Assistance with tasks of daily living, including help to improve a person’s ability to do things
- Supported employment services and help for people to move to work programs that prepare people with disability for work
- Training related to the caring role that may enhance your ability to provide care
Supports that maintain a carer’s health and wellbeing will also be considered. This support may include participation in a support group or a special interest network. In deciding whether to fund or provide a support, the NDIA will take account of what it is reasonable to expect families, carers, informal networks and the community to provide.
Carer Checklists can help you think about the type of care and support you currently provide for the person you care for and may help you consider all aspects of the person with disability’s needs. These documents are useful in helping you prepare for the planning meeting and can be provided to the Local Coordinator.
As a Carer, you have the option to submit a Carer Statement during the planning meeting. This could be particularly important for carers of people with psychosocial disability. It can provide additional insight into the impact a person’s mental health condition has on their ability to participate in everyday activities and on the wellbeing of the family.
A carer statement (in written or verbal form) may include:
- How the caring role affects you
- Whether you are able and willing to keep caring for the person with disability in the same way into the future, and what the impact of your caring role has on your own personal needs and goals, (for example - work; study; travel; social, cultural or religious engagement activities )
- Other informal supports the person with disability has, such as family or friends
- Any other information that would be important for the Local Coordinator to know when assessing supports required.